Ser\u00a0madre\u00a0con\u00a0da\u00f1o\u00a0cerebral\u00a0es\u00a0muy\u00a0duro,\u00a0porque\u00a0es\u00a0una\u00a0presencia\u00a0ausente.\u00a0Est\u00e1s,\u00a0pero\u00a0no\u00a0est\u00e1s. Se\u00a0trata\u00a0de\u00a0estar\u00a0activos\u00a0en la\u00a0crianza,\u00a0de\u00a0tomar\u00a0parte,\u00a0de\u00a0crear\u00a0el\u00a0v\u00ednculo\u00a0afectivo, de responder a las necesidades de los peques como har\u00eda cualquier mami del\u00a0mundo mundial, de ir a las reuniones del cole, de conocer a sus amiguitos, de\u00a0acompa\u00f1arles a comprar juguetes, de llevarles a las fiestas de cumple de sus amigos\u2026\u00a0Es\u00a0decir,\u00a0de\u00a0hacer\u00a0de\u00a0mam\u00e1\u00a0y\u00a0de\u00a0pap\u00e1.\u00a0Se\u00a0trata\u00a0de\u00a0desarrollar\u00a0el\u00a0rol\u00a0que nos\u00a0corresponde;\u00a0y\u00a0que\u00a0no\u00a0por\u00a0tener\u00a0da\u00f1o\u00a0cerebral\u00a0dejemos\u00a0de\u00a0hacer\u00a0el\u00a0papel\u00a0que\u00a0nos\u00a0toca\u00a0en\u00a0la\u00a0vida\u00a0de nuestros\u00a0hijos\u2026mam\u00e1\u00a0o\u00a0pap\u00e1
Creo que la sociedad ni siquiera se plantea que las personas con da\u00f1o cerebral\u00a0podemos\u00a0ser\u00a0pap\u00e1s\u00a0y mam\u00e1s\u00a0como\u00a0los\u00a0dem\u00e1s.\u00a0Es\u00a0importante\u00a0que\u00a0se\u00a0nos\u00a0respeten\u00a0las\u00a0tareas\u00a0que\u00a0tenemos\u00a0asignadas\u00a0como madres\u00a0y\u00a0padres,\u00a0desde\u00a0la\u00a0propia\u00a0familia.<\/p>\n\n\n\n
Cuando\u00a0en\u00a0una\u00a0familia\u00a0una\u00a0persona\u00a0sufre\u00a0una\u00a0enfermedad\u00a0grave,\u00a0es\u00a0como\u00a0un\u00a0tsunami\u00a0en\u00a0una\u00a0playa, lo inunda\u00a0todo,\u00a0incluidos\u00a0los\u00a0ni\u00f1os m\u00e1s\u00a0peque\u00f1os.\u00a0Por\u00a0este\u00a0motivo\u00a0hay\u00a0que protegerlos con especial atenci\u00f3n. En este aspecto es fundamental la ayuda del\u00a0resto\u00a0de\u00a0la\u00a0familia,\u00a0como\u00a0los\u00a0abuelos,\u00a0los\u00a0t\u00edos\u00a0y\u00a0otros\u00a0adultos que\u00a0puedan\u00a0asumir\u00a0roles\u00a0de\u00a0cuidado\u00a0y\u00a0de\u00a0protecci\u00f3n\u00a0al\u00a0n\u00facleo\u00a0familiar\u00a0afectado.
Sufr\u00ed\u00a0el\u00a0ictus\u00a0con\u00a038\u00a0a\u00f1os,\u00a0teniendo\u00a0un\u00a0hijo\u00a0de\u00a04\u00a0a\u00f1os\u00a0y\u00a0una\u00a0ni\u00f1a\u00a0de\u00a02\u00a0a\u00f1os.\u00a0En\u00a0el\u00a0caso\u00a0de\u00a0mi\u00a0hijo\u00a0mayor,\u00a0a los\u00a0pocos\u00a0meses\u00a0de\u00a0sufrir\u00a0el\u00a0ictus\u00a0empez\u00f3\u00a0a\u00a0exteriorizar\u00a0sus\u00a0emociones con un tic nervioso en la cara. Lo hablamos con su tutor, que a su vez lo\u00a0trabaj\u00f3 con la psic\u00f3loga de la ikastola, y entre los dos consiguieron que el nene\u00a0canalizase\u00a0sus\u00a0emociones\u00a0de\u00a0otra manera,\u00a0y\u00a0el\u00a0tic\u00a0desapareci\u00f3\u00a0tal\u00a0y\u00a0como\u00a0vino.<\/p>\n\n\n\n
Mi\u00a0hija\u00a0peque\u00f1a,\u00a0por\u00a0su\u00a0parte,\u00a0no\u00a0ha\u00a0exteriorizado\u00a0tan\u00a0claramente\u00a0sus\u00a0emociones,\u00a0lo\u00a0\u00fanico\u00a0que\u00a0nos\u00a0ha dejado\u00a0intuir\u00a0es\u00a0que\u00a0dec\u00eda\u00a0que\u00a0no\u00a0quer\u00eda\u00a0dormir\u00a0conmigo\u00a0(su\u00a0mam\u00e1)\u00a0porque\u00a0no quer\u00eda\u00a0que\u00a0le\u00a0contagiase\u00a0\u201clo de\u00a0mi\u00a0cabecita\u201d.\u00a0Cierto\u00a0es que\u00a0est\u00e1bamos en\u00a0plena\u00a0pandemia\u00a0del\u00a0COVID\u00a0cuando\u00a0s\u00f3lo\u00a0se\u00a0hablaba\u00a0de contagios.
Hoy\u00a0en\u00a0d\u00eda,\u00a0las\u00a0aguas\u00a0han\u00a0vuelto\u00a0a\u00a0su\u00a0cauce,\u00a0somos\u00a0una\u00a0familia\u00a0muy\u00a0feliz,\u00a0soy\u00a0referente\u00a0para\u00a0mis\u00a0hijos,\u00a0al igual\u00a0que\u00a0mi\u00a0maridazo.\u00a0Ejerzo\u00a0mi\u00a0rol\u00a0de\u00a0madre\u00a0con\u00a0plena\u00a0naturalidad, y de todas las\u00a0facetas\u00a0que\u00a0tengo\u00a0(esposa,\u00a0periodista,\u00a0administrativa,\u00a0amiga, compa\u00f1era,\u00a0mujer,\u00a0hija,\u00a0hermana,t\u00eda)\u00a0la\u00a0que\u00a0m\u00e1s\u00a0me\u00a0gusta\u00a0ser\u00a0es\u00a0MAM\u00c1.<\/p>","protected":false},"excerpt":{"rendered":"
Comenzamos con este art\u00edculo de la periodista y usuaria Cristina Solano, una serie de entrevistas realizadas tambi\u00e9n por ella sobre ser padres y madres con Da\u00f1o Cerebral Adquirido<\/p>","protected":false},"author":1,"featured_media":2007,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[8],"tags":[],"class_list":["post-2003","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-dia-a-dia-en-adacen"],"_links":{"self":[{"href":"https:\/\/www.adacen.org\/eu\/wp-json\/wp\/v2\/posts\/2003","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.adacen.org\/eu\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.adacen.org\/eu\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.adacen.org\/eu\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.adacen.org\/eu\/wp-json\/wp\/v2\/comments?post=2003"}],"version-history":[{"count":2,"href":"https:\/\/www.adacen.org\/eu\/wp-json\/wp\/v2\/posts\/2003\/revisions"}],"predecessor-version":[{"id":2006,"href":"https:\/\/www.adacen.org\/eu\/wp-json\/wp\/v2\/posts\/2003\/revisions\/2006"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.adacen.org\/eu\/wp-json\/wp\/v2\/media\/2007"}],"wp:attachment":[{"href":"https:\/\/www.adacen.org\/eu\/wp-json\/wp\/v2\/media?parent=2003"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.adacen.org\/eu\/wp-json\/wp\/v2\/categories?post=2003"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.adacen.org\/eu\/wp-json\/wp\/v2\/tags?post=2003"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}